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Saturday, August 12, 2006

Desperate Measures

How do you potty train an Austitc kid?
We have had the worst time BM (bowel movement)training Hillard... I am going to be very honest and graphic!
He poops and doesn't seem to care.... If we don't catch it in time, which is most of the time, he smears it all over his floor, walls and himself... Hillard lacks the "Know How" to ask for help so he licks his hands to get it off.. Yes folks this is one of the many trials of having a socially void child! Chris and I have been in tears, and furious all at the same time while we clean him and his room. We make him help us clean everything, and he just giggles.... I cry everyday...... We have tried many tactics and in the end we have failed him, and he us. Chris has looked on the messge boards and there are so many parents in the same stituation. The only suggestion that seemed to come up in every entry was "MAKE HIM COMFORTABLE" so Chris did this early Saturday morning:




You think he'll do it? Gee I hope so! Last year at school he would hold the BM's until he got home... This year he doesn't give the teacher the same respect! She is such a lovely woman, and we all have our work cut out for us... His teacher has only had Hillard in her class for 2 days and he was sent home on Friday...It's a huge hurdle and I suspect it will be harder than Pee Pee training. We have been at this for over a year and I am running out of patients.

This is a great video from Autism Speaks... Please get tissue before watching it.. IT DOES best describe the everyday life of a parent of an autistic child.
Here are some other resources availble that I have found.

A weblog dedicated Potty training autistics... read the comments, very helpful!
others:
http://www.epinions.com/content_4025262212
http://www.marshall.edu/coe/atc/RESOURCELIST.HTML

Thanks for the sholders to lean on... I appreciate everyones support:)

18 Comments:

Blogger Sarah said...

I can only imagine the frustration!

You can always vent to "us".

12:20 PM  
Blogger amylovie said...

Wow. That is a high hurdle. You can lean on us anytime.

Amy

4:22 PM  
Blogger Lisa said...

Awww, hugs sweetie. Sorry this is so difficult for you and for Hillard. I'll be keeping your family in my prayers!

8:00 PM  
Blogger Lolly said...

I will definitely be thinking about you, Cath. I hope this works for H.

*hugs*

9:36 PM  
Blogger CynCyn said...

wow. I am not that familiar with autistic children, but would he understand it if the only place he got to watch his favorite video was in the potty?
Good luck Catherine. I hope it works. Fast.

12:39 AM  
Blogger Shez75 said...

Just know we're all rooting for you, and for Hillard. I know it doesn't help, and maybe in your situation it won't, but my great grandmother (a baby nurse) always told me "this too shall pass" and while raising my 3 I lived by it. My youngest grandchildren have problems too, and we've been thru this same thing with the poop training. They are both now all potty trained. Hang in there!
Sheri in GA

3:42 PM  
Blogger BLACK DOG KNITS said...

I can't begin to imagine your situation. I'll mention it to my lecturer later this week and I'll get back to you with some links. (I'm studying medicine- specialising in paediatrics). x

4:08 PM  
Blogger cherry blossom said...

awww sweetie it must be so frustrating. just know that we're here to vent to. i'll keep my fingers crossed that the tv in the bathroom works :) *crosses fingers*

12:08 AM  
Blogger Sorka said...

Ahh.. dear.. it'll happen.. It's just gonna take even longer than you thought..and that't the crux.. you kinda have to just live by their time table not yours on some things.. it'll get into his routine and you'll get there.. My regular little guy has the nasty habit of wiping the ick all over.. he had an accident in the tub and well.. had a litte fun with it!!AAHHH what a mess.. so I know the pain of cleaning it up!UCK!
Denise
knitchat.com

6:50 AM  
Anonymous keri said...

Thinking of you guys, I know H will get there when he's ready. Good luck! =)

7:11 AM  
Blogger Nyxxie said...

I don't know what to say except that I am here for you if you need anything even just to talk or vent.

10:40 AM  
Anonymous Suzanne said...

Hang in there...you'll find the way - you always do.

8:45 AM  
Blogger Andrea said...

You can endure anything! Pray! Pray! Pray!

7:03 AM  
Blogger Shelley said...

I don't know what to say. Sorry doesn't seem like enough, and it definately can't help the situation. I will say a prayer for you. The Lord knows the struggles you are having and wants to help you get through to the other side. Lean on Him. He loves you.

7:27 AM  
Blogger del said...

I hope & pray that you all find the strength & patience to get through this. I wish I could do something besides empathize with you. I'm sure you're doing the very best you can. Hang in there!!!

4:41 PM  
Blogger traveling knitter said...

I wish it was easier for you guys. :( I can't even imagine having to face this kind of thing everyday. I think the tv in the bathroom is a good idea.....are autistic kids ever successfully potty trained?

7:55 AM  
Blogger Corrie said...

ohhhhh you have your work cut out for you don't you! when you hear all the stories about how hard potty training is - well theirs are nothing compared to yours! keep strong!!!! ohhh see you are in the lace swap too!

12:36 AM  
Blogger Emily said...

You didn't shock me with this. My father was a teacher in a school for mentally handicapped children and I grew up among them. My first real memory of the school and the kids was walking into the halway of this big rented villa at the coast (they had retreats there) where all the potties were, and seeing one of the kids happily eating his own BM (nice word :D) like it was chocolate. It's hard to understand this at times, but I did. Strangely enough. For us humans it's very strange, but then again, so is your son. I mean it in another way. Don't get this wrong, but it's strangely enough one of those "animal treats" you see in some kids with similar problems.

I read from you next problem you are getting him potty trained, so keep it going dear! It's a bit harder, but you'll get there, and there are plenty of people out here who will support you like nothing else, even through the strangest events.

Love and greets from Belgium!

1:58 PM  

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